tag:blogger.com,1999:blog-60700407879302048.post2240172327992224238..comments2023-11-05T03:57:45.742-08:00Comments on Orange: Coming to grips with it allJuliahttp://www.blogger.com/profile/12065377267682881396noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-60700407879302048.post-19321238765979335942011-01-28T10:26:47.847-08:002011-01-28T10:26:47.847-08:00yes. this is a great post julia. (and i'm so g...yes. this is a great post julia. (and i'm so glad you are posting more lately ;)) i remember asking- profound hearing loss? does that mean deaf? i had no idea. we use the word deaf with monrovia all the time.<br /><br />but yes- she is still deaf. and always will be. at some moments that is so hard. the rest of the time it is just normal.<br /><br />(btw can you email me sometime? our iep is coming up in april and i know they are going to say m is performing too well to get services. she is doing great- but she is still deaf. and still has trouble in noisy/lots of kids/people contexts. if you're willing i'd love to see some of what you used to get services. my email is susannaheloyse(at)yahoo thanks!!!!)Susannahhttps://www.blogger.com/profile/12659817050414584581noreply@blogger.comtag:blogger.com,1999:blog-60700407879302048.post-81356396035823989592011-01-27T17:56:53.440-08:002011-01-27T17:56:53.440-08:00We're always at a loss for what to say. Nolan ...We're always at a loss for what to say. Nolan isn't "deaf" by the definition of the word, but hard-of-hearing becomes very cumbersome in conversation. I don't like "hearing impaired" for some reason (just a personal aversion to the term) and "I have a child with hearing loss" is just as cumbersome as "I have a child who is hard-of-hearing." <br /><br />Fortunately, we don't have to explain very often. Kids ask about his hearing aids, and Nolan answers for himself now.leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-60700407879302048.post-61458499469253366032011-01-25T09:15:50.717-08:002011-01-25T09:15:50.717-08:00I say deaf too.We have family members who still fl...I say deaf too.We have family members who still flinch at the word tho.For us,it doesn't matter.We love her and we are proud of her.We thank god that she was born in the era of CI where a deaf child can still hear with the device.Yantihttps://www.blogger.com/profile/15089591370125328235noreply@blogger.comtag:blogger.com,1999:blog-60700407879302048.post-79704050925154517332011-01-25T08:52:58.360-08:002011-01-25T08:52:58.360-08:00I agree with melanie, I think I appreciate many th...I agree with melanie, I think I appreciate many things more since "deafness" entered my life.But everyday I thank God, that we are doing the best we can.Yes , it still stings inside some days and some days, its a pat on the back for a good job we are doing with her.I accept HI more as it seems less stark and less dis heartening then deaf.rouchi6https://www.blogger.com/profile/03580500636098449632noreply@blogger.comtag:blogger.com,1999:blog-60700407879302048.post-41526829441841828922011-01-24T15:54:00.040-08:002011-01-24T15:54:00.040-08:00I feel the same way. I wish I was told the word DE...I feel the same way. I wish I was told the word DEAF when Peas was diagnosed instead of the medical lingo. It took a long time for the sting of that word to go away. <br /><br />That said, I often wonder if I would appreciate my children's voices as much as I do if I didn't have a child like Noah...Melanie https://www.blogger.com/profile/10523026102207613431noreply@blogger.com